ARCH National Respite Network and Resource Center

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The resources provided below aim to equip individuals with the knowledge and skills needed to navigate the complexities of caring for someone with a spinal cord injury. Family caregiving encompasses a wide range of tasks, many of which may be unfamiliar to individuals new to this role. These tasks include assisting with daily care, managing household responsibilities, arranging accessible transportation, facilitating social engagement, and advocating for ongoing medical needs.

This section offers access to agencies and tip sheets designed to assist families living with spinal cord injuries in developing personalized caregiver plans. Resources cover areas such as finding caregivers, accessing medical services, adapting homes for wheelchair accessibility, locating transportation options, and identifying emotional support and caregiver respite services.

Furthermore, the listings include statewide spinal cord injury associations and community groups that promote empowerment, independence, and peer support. Additional disability resources are also provided to encourage a positive approach to daily living.

ARCH National Respite Network and Resource Center ARCH National Respite Network and Resource Center was founded to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums. The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center, which is funded by the Administration for Community Living in the US Department of Health and Human Services.