ARCH National Respite Network and Resource Center

Here's what's in this section: 

Explore the resources below to expand your knowledge and ability to navigate the complexities of caring for someone with a spinal cord injury.

Family caregiving involves an array of tasks. For many individuals, it is a new and unknown territory. The tasks can range from helping someone with daily care, providing support with household tasks, securing accessible transportation, helping to motivate and enable involvement in social activities, to advocating for ongoing medical care. 

There are agencies and tip sheets in this section that can help families living with spinal cord injuries develop an individualized caregiver plan.  These include resources for finding a caregiver as well as for identifying medical services to support emerging needs, modifying a home for wheelchair accessibility, locating transportation resources and agencies to support adaptive driving, as well as identifying medical providers, groups, and agencies for emotional support and caregiver respite.

Also included are listings of statewide spinal cord injury associations and community groups that promote empowerment, independence, and peer support. Other disability resources to help adopt a positive approach to daily living are also included.

ARCH National Respite Network and Resource Center ARCH National Respite Network and Resource Center was founded to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums. The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center, which is funded by the Administration for Community Living in the US Department of Health and Human Services.