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CareCure Community

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Raising a child with a spinal cord injury requires that parents and caregivers learn about how to promote a child’s physical health and wellness, as well as their emotional and social well being.

Explore this section to discover resources that explain how a child’s growth and development is impacted by a spinal cord injury, and the developmental milestones to be reached at various ages. Adaptations and accommodations will be required to support learning at school. Resources are available to support a child’s social and emotional development and help foster self-confidence, friendships, and ongoing development of independence.

Promoting a child’s recovery from a spinal cord injury often requires a new approach to communication. Discover resources with advice on how to talk with children and teens about their spinal cord injuries, and how to find therapists who can help children develop positive self-esteem, manage traumatic stress, and PTSD. Resources are included with helpful information on interacting and communicating with extended family, friends, and teachers about spinal cord injury.

Learn how to collaborate with healthcare professionals and educators to develop an Individualize Education Plan (IEP) to ensure learning needs are addressed at all stages of education – preschool, elementary school, middle school, high school, and college. Section 504 of the Rehabilitation Act of 1973 requires that students with disabilities be educated along with their non-disabled peers to the greatest extent possible. The Americans with Disabilities Act (ADA) also applies to children.

CareCure Community

Choose from over 70 forums in which hundreds of users are able to interact, share pictures, and post comments. Questions can be posed to an experienced spinal cord injury  nurse who will post back and forth with you helping you find answers and define questions you can ask your doctor. You can also follow what’s new in research as well as read articles by research professor and founding director of the W.M. Keck Center for Collaborative Neuroscience Dr. Wise Young who answers questions and posts on topics surrounding disability. The Spinal Cord Injury Community Forums can be a place to find answers to questions, inspirational stories, and empathy. Follow the threads to view questions and answers from others in your situation, post your own concerns, and receive feedback.

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