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Caring Road Support Network

Here's what's in this section: 

Explore the resources below to expand your knowledge and ability to navigate the complexities of caring for someone with a spinal cord injury.

Family caregiving involves an array of tasks. For many individuals, it is a new and unknown territory. The tasks can range from helping someone with daily care, providing support with household tasks, securing accessible transportation, helping to motivate and enable involvement in social activities, to advocating for ongoing medical care. 

There are agencies and tip sheets in this section that can help families living with spinal cord injuries develop an individualized caregiver plan.  These include resources for finding a caregiver as well as for identifying medical services to support emerging needs, modifying a home for wheelchair accessibility, locating transportation resources and agencies to support adaptive driving, as well as identifying medical providers, groups, and agencies for emotional support and caregiver respite.

Also included are listings of statewide spinal cord injury associations and community groups that promote empowerment, independence, and peer support. Other disability resources to help adopt a positive approach to daily living are also included.

Caring Road Support Network

Identifying itself as “the online community of family caregivers,” this website offers free resources designed to help you as a caregiver both in meeting challenges and in caring for yourself. Resources include a support network to connect you to caregivers in similar situations, as well as articles with medical, legal, financial and personal care tips and suggestions. Click on Caregiving Tips and select Getting Organized for tools on setting up a basic caregiving plan, checklists, information sheets, and even a suggested daily schedule.

 

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