close – Connecting Scientists & the SCI Community

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Peer-reviewed fact sheets and videos designed to help people living with spinal cord injuries manage daily care and maximize independence by medical and clinical experts in SCI care, patient education, and research. Information provided undergoes systematic review from medical experts to ensure accuracy and currency with best-practice research.

Sources include the Shirley Ryan AbilityLab’s LIFE Center and the Model Systems Knowledge Translation Center which both provide fact sheets on topics specific to spinal cord injury – anatomy and physiology, nerve function, and levels of injury. Understand common terms such as paraplegia, quadriplegia, tetraplegia, complete and incomplete injuries.

Discover best-practice techniques in mobility and safe transfers, information on bowel and bladder function, surgical alternatives for bladder management, skin care and pressure sores, respiratory health, autonomic dysreflexia, spasticity, and pain management. Find additional information on maintenance of manual and power wheelchairs, exercise after spinal cord injury, options for adaptive sports and recreation, tips to minimize depression, and adjustment to life after spinal cord injury.   

Fact sheets to support social and emotional wellness include topics on sexuality, dating and relationships, employment and education, peer support, and managing caregiver stress. – Connecting Scientists & the SCI Community is a website designed to provide up-to-date and user-friendly information about spinal cord injury clinical trials.

It enables individuals to:

  • Search via location, injury details, therapies and outcomes
  • Receive email updates on new trials of interest to them
  •  Find answers for the most common questions about trials
  • Have the clinical information distilled into everyday language
  • Applying quickly and directly to the trials from the web site

Additionally, it is for Investigators to help increase recruitment requests for their respective trials. It aims to balance the needs of both communities, resulting in more people participating in trials, and trials having more candidates to find better matches.