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SPINALpedia

Explore the resources below to expand your knowledge and ability to navigate the complexities of caring for someone with a spinal cord injury.

Family caregiving involves an array of tasks. For many individuals, it is a new and unknown territory. The tasks can range from helping someone with daily care, providing support with household tasks, securing accessible transportation, helping to motivate and enable involvement in social activities, to advocating for ongoing medical care. It is not unusual for family caregivers to feel unsure of themselves, where to start, or who to turn to. At first, caregivers find themselves wondering, “What resources are available? How do I find support? What can I do to help my loved one and myself?”

There are agencies and tip sheets in this section that can help families living with spinal cord injuries develop an individualized caregiver plan.  These include resources for finding a caregiver as well as for identifying medical services to support emerging needs, modifying a home for wheelchair accessibility, locating transportation resources and agencies to support adaptive driving, as well as identifying medical providers, groups, and agencies for emotional support and caregiver respite.

Also included are listings of statewide spinal cord injury associations and community groups that promote empowerment, independence, and peer support. Other disability resources to help adopt a positive approach to daily living are also included.

SPINALpedia

SPINALpedia is a video sharing mentor network for people with paralysis from spinal cord injury or illness and their family and friends.The experts of life with paralysis are the people who live it every day, injured or not. With an incredible diversity of experiences and challenges for a variety of people and injuries, the process of adaptation is daunting and complicated. With SPINALpedia, we give people the opportunity to share their experiences and learn from others, meeting a diversity of needs and creating a dynamic, sustainable community grounded in our common desire to overcome the challenges of paralysis.

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