SPINALpedia

Here's what's in this section: 

The resources provided below aim to equip individuals with the knowledge and skills needed to navigate the complexities of caring for someone with a spinal cord injury. Family caregiving encompasses a wide range of tasks, many of which may be unfamiliar to individuals new to this role. These tasks include assisting with daily care, managing household responsibilities, arranging accessible transportation, facilitating social engagement, and advocating for ongoing medical needs.

This section offers access to agencies and tip sheets designed to assist families living with spinal cord injuries in developing personalized caregiver plans. Resources cover areas such as finding caregivers, accessing medical services, adapting homes for wheelchair accessibility, locating transportation options, and identifying emotional support and caregiver respite services.

Furthermore, the listings include statewide spinal cord injury associations and community groups that promote empowerment, independence, and peer support. Additional disability resources are also provided to encourage a positive approach to daily living.

SPINALpedia SPINALpedia is a video sharing mentor network for people with paralysis from spinal cord injury or illness and their family and friends.The experts of life with paralysis are the people who live it every day, injured or not. With an incredible diversity of experiences and challenges for a variety of people and injuries, the process of adaptation is daunting and complicated. With SPINALpedia, we give people the opportunity to share their experiences and learn from others, meeting a diversity of needs and creating a dynamic, sustainable community grounded in our common desire to overcome the challenges of paralysis.