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Understanding SCI
- Pediatric Spinal Cord Injuries
Bedsores
- Bedsores & Pressure Ulcers
- How to Find the Right Wheelchair
Video Interviews
Resources
Join Our Community
Blog
Donate

Spinal Cord Injury Medical Expert Interviews

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What do family members need to focus on during rehabilitation?

Spinal Cord Injury Basics
Preventing Bedsores (Pressure Ulcers)
Transition from Hospital to Home
Adapting to a New Spinal Cord Injury
Sex and Fertility After Spinal Cord Injury
How Family Life Changes After Spinal Cord Injury
Spinal Cord Injury Rehabilitation Basics
Adjusting to Social Life in a Wheelchair
Physical Therapy After Spinal Cord Injury
Taking Control of Your Life After Spinal Cord Injury
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Peer Counseling After a Spinal Cord Injury

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Transcript More videos by Guy W. Fried More videos on this topic

I think family members have to take notes. I think they have to set up their priorities. I think they figure out what goes on, and when they are going from being the bench strength of sitting on the bench, to what role are they going to have to play. Are they going to have to transfer these patients? Are they going to have to catheterize them? Are they going to have to feed them? Or are they going to have to change their Foleys, change their trachs, or is someone else going to do that? So, they have to figure out their role first. So, depending on how injured the patient is, and depending on how many people or services are available. What’s the insurance going to pay for, what’s the insurance not going to pay for? What do they need to do? And they have to figure out what kind of commitment they can put out there. Are they there just to give the love, are they there to just give the advice, or are they there to give the brute strength of getting it done? Are they there to interact with the social services out there and make sure that other people are doing their jobs? So, they have to really get a sense of defining what is their job, what is their role, because there are too many options of roles out there to learn them all. So what you need to do is figure out, “What role am I going to be responsible for? Do I have to catch the ball, throw the ball, or block the ball?” Because, they’re three different roles.

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FacingDisability.com is an informational and support website for families facing spinal cord injuries. The website does not provide medical advice, recommend or endorse health care products or services, or control the information found on external websites. The Hill Foundation is a 501 (c) (3) private operating foundation established by Robert Hill and Thea Flaum.

737 N. Michigan Ave., Suite 1560 , Chicago, IL 60611.

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Photography by Rona Talcott

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FacingDisability.com is an informational and support website for families facing spinal cord injuries. The website does not provide medical advice, recommend or endorse health care products or services, or control the information found on external websites. The Hill Foundation is a 501 (c) (3) private operating foundation established by Robert Hill and Thea Flaum.

737 N. Michigan Ave., Suite 1560 , Chicago, IL 60611.

© 2011 – 2021 Hill Foundation for Families Living With Disabilities

Photography by Rona Talcott