April – What are your continuing financial concerns?

Managing to be able to keep up the amount of money I need to live life the way I—as close to how I used to as possible, and be able to afford the kind of help that I now require is tricky. As I said, since I don’t qualify for lot of programs like Medicaid, I have to be private pay, so finding help is expensive; I mean this is an expensive disability. I need caregiving help and one of my goals, because I realized the financial burden that it was going to present, was to become as independent as possible, so I wouldn’t need a caregiver eight-hours-a-day. Now I’m down to kind of two-hours-a-day in the morning, and once I’m up and dressed, I’m off on my own for the day.