Personal Interviews About Life With Paralysis

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Q&A: What was the hardest part about coming home?

Problems Coming Home After a Spinal Cord Injury
Personal Experiences with Paralysis

Thirty percent of people with spinal cord injury are hospitalized one or more times every year after their injury. Leading causes are urinary tract infections and pressure sores, followed by respiratory, digestive, circulatory and musculoskeletal diseases. This makes planning a daily skin-inspection routine and finding reliable help important in maintaining a healthy lifestyle. Both individuals and family members often feel unprepared and uncertain of their caregiving abilities.

Often, spinal cord injury patients return to homes that are not accessibly designed, which leave them feeling isolated and dependent on others for basic needs. It is not uncommon to experience depression.

We asked 100 men and women living with spinal cord injury about the hardest part about coming home. The best answers are below.