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Mark – What’s your number-one day-to-day living problem?

Mark – What’s your number-one day-to-day living problem?

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My spasticity has increased, my pain has increased. Energy level is still good. You know, going from manual to power chair, and power chair to power chair that has more features on it than I know what to do with to kind of compensate. I mean I can pu... Show More

My spasticity has increased, my pain has increased. Energy level is still good. You know, going from manual to power chair, and power chair to power chair that has more features on it than I know what to do with to kind of compensate. I mean I can put this chair on a lot of different positions to reduce the pain. Because I’m one of these “I do not like taking anything kind” of guys. I do take something for urological reasons to help me pee because I am trying to avoid having to do anything invasive. So, I think my number-one every day, you know, it’s still that managing everything, it’s how long things take, or it’s the kind of help you need. If there’s one change, then it starts a series of domino things. So, it’s a constant management for me. Personally, every day you’re managing and sometimes that can be tiring, I mean, that takes a lot of energy. And you can’t let it, as you’re well aware, you can’t let it flow over, and into someone else’s life because they got their own series of things. And so, you can’t just let go, you still have to be responsible for yourself, but it’s hard. I mean sometimes I just want to say, “can you just handle this?” “Can you just do this because I don’t really want to do it anymore.” But to maintain my relationship, and the balance my wife and I have, or it’s something I have to do and sometimes it just sucks.

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Mark – What’s your number-one day-to-day living problem?

Mark

Injured in 1981 at age 19, quadriplegic
More Videos by Mark
Transcriptadd

My spasticity has increased, my pain has increased. Energy level is still good. You know, going from manual to power chair, and power chair to power chair that has more features on it than I know what to do with to kind of compensate. I mean I can put this chair on a lot of different positions to reduce the pain. Because I’m one of these “I do not like taking anything kind” of guys. I do take something for urological reasons to help me pee because I am trying to avoid having to do anything invasive. So, I think my number-one every day, you know, it’s still that managing everything, it’s how long things take, or it’s the kind of help you need. If there’s one change, then it starts a series of domino things. So, it’s a constant management for me. Personally, every day you’re managing and sometimes that can be tiring, I mean, that takes a lot of energy. And you can’t let it, as you’re well aware, you can’t let it flow over, and into someone else’s life because they got their own series of things. And so, you can’t just let go, you still have to be responsible for yourself, but it’s hard. I mean sometimes I just want to say, “can you just handle this?” “Can you just do this because I don’t really want to do it anymore.” But to maintain my relationship, and the balance my wife and I have, or it’s something I have to do and sometimes it just sucks.

Mark – What’s your number-one day-to-day living problem?
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