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Create Your Own Personal Health Record

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Raising a child with a spinal cord injury requires that parents and caregivers learn about how to promote a child’s physical health and wellness, as well as their emotional and social well being.

Explore this section to discover resources that explain how a child’s growth and development is impacted by a spinal cord injury, and the developmental milestones to be reached at various ages. Adaptations and accommodations will be required to support learning at school. Resources are available to support a child’s social and emotional development and help foster self-confidence, friendships, and ongoing development of independence.

Promoting a child’s recovery from a spinal cord injury often requires a new approach to communication. Discover resources with advice on how to talk with children and teens about their spinal cord injuries, and how to find therapists who can help children develop positive self-esteem, manage traumatic stress, and PTSD. Resources are included with helpful information on interacting and communicating with extended family, friends, and teachers about spinal cord injury.

Learn how to collaborate with healthcare professionals and educators to develop an Individualize Education Plan (IEP) to ensure learning needs are addressed at all stages of education – preschool, elementary school, middle school, high school, and college. Section 504 of the Rehabilitation Act of 1973 requires that students with disabilities be educated along with their non-disabled peers to the greatest extent possible. The Americans with Disabilities Act (ADA) also applies to children.

Create Your Own Personal Health Record

An important step in advocating for your loved one includes organizing information that supports daily care. A personal health record is a tool that enables consumers to manage health information so they can communicate more effectively and easily with health care providers. This consumer education sheet provides a basic template to help you begin the process of creating a personal health record. Additional links to other commercially available products to help track information are provided as well.

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