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Rosalynn Carter Institute for Caregiving

Explore the resources below to expand your knowledge and ability to navigate the complexities of caring for someone with a spinal cord injury.

Family caregiving involves an array of tasks. For many individuals, it is a new and unknown territory. The tasks can range from helping someone with daily care, providing support with household tasks, securing accessible transportation, helping to motivate and enable involvement in social activities, to advocating for ongoing medical care. It is not unusual for family caregivers to feel unsure of themselves, where to start, or who to turn to. At first, caregivers find themselves wondering, “What resources are available? How do I find support? What can I do to help my loved one and myself?”

There are agencies and tip sheets in this section that can help families living with spinal cord injuries develop an individualized caregiver plan.  These include resources for finding a caregiver as well as for identifying medical services to support emerging needs, modifying a home for wheelchair accessibility, locating transportation resources and agencies to support adaptive driving, as well as identifying medical providers, groups, and agencies for emotional support and caregiver respite.

Also included are listings of statewide spinal cord injury associations and community groups that promote empowerment, independence, and peer support. Other disability resources to help adopt a positive approach to daily living are also included.

Rosalynn Carter Institute for Caregiving

The Rosalynn Carter Institute for Caregiving establishes local, state, national, and international partnerships committed to building quality, long-term, home and community-based services. RCI overall goal is to support caregivers – both family and professional – through efforts of advocacy, education, research, and service.

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