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Christopher – Who does the primary caregiving?

Christopher – Who does the primary caregiving?

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One of my primary caregivers, I should say, is my brother.  And I, and I wanted to give my brother, of course, the ability to help me because he was having, he had a daughter, and he needed a job.  And so, I found out through the, through t... Show More

One of my primary caregivers, I should say, is my brother.  And I, and I wanted to give my brother, of course, the ability to help me because he was having, he had a daughter, and he needed a job.  And so, I found out through the, through the state, that they would pay for my brother to be a caregiver for me, so that was fortunate that way.  And one of the other things that was also helpful was that I knew that through experience and time, that caregivers can get burned out, if they’re working, you know, 40 hours a week for you.  So I learned to develop a sense of understanding that you need more than just one person to take care of you.  So I have three caregivers, it’s through a multitude of time.  I have needs assessed through what’s called Department of Rehabilitative Services.  And they assessed me, they came into my home, they assessed my needs throughout the full day, and they give you a total amount of hours.  And so, through that time period, I have three caregivers, and I separate that time throughout the week, so that not one person is burned out through a period of time.  Because all this, you know, all this is so much work, one person is not enough.

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Christopher – Who does the primary caregiving?

Christopher

Injured in 1980 at age 16, quadriplegic
More Videos by Christopher
Transcriptadd

One of my primary caregivers, I should say, is my brother.  And I, and I wanted to give my brother, of course, the ability to help me because he was having, he had a daughter, and he needed a job.  And so, I found out through the, through the state, that they would pay for my brother to be a caregiver for me, so that was fortunate that way.  And one of the other things that was also helpful was that I knew that through experience and time, that caregivers can get burned out, if they’re working, you know, 40 hours a week for you.  So I learned to develop a sense of understanding that you need more than just one person to take care of you.  So I have three caregivers, it’s through a multitude of time.  I have needs assessed through what’s called Department of Rehabilitative Services.  And they assessed me, they came into my home, they assessed my needs throughout the full day, and they give you a total amount of hours.  And so, through that time period, I have three caregivers, and I separate that time throughout the week, so that not one person is burned out through a period of time.  Because all this, you know, all this is so much work, one person is not enough.

Christopher – Who does the primary caregiving?
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