The first database on women’s health and disability has been created by the Program for Research on Women’s Health and Disability (PROWHD) at University of Michigan Medicine. Funded by the National Institutes of Health, it is the first patient reported outcome registry ever created to help physicians and other healthcare professionals understand the health-related quality of life of their female patients with physical disabilities.
PROWHD is actively looking for women with spinal cord injuries to participate in a new study, ‘Developing Pregnancy Decision-Making Tools for Women with Spinal Cord Injury,’ which is partially funded by a grant from the Nielsen Foundation.
Women with SCI often struggle to find information on pregnancy, or know the questions they need to ask. The decision-making tools developed from this study will help women with SCI and their healthcare providers to navigate their pregnancies.
If you live in the United States and are over the age of 18 and are interested in learning more about this study or the registry, contact Shannen Bolde by calling (734) 615-8543 or emailing SCIpregnancystudy@umich.edu.
For more information and videos on pregnancy after spinal cord injury, click here to watch medical expert, Diane Rowles, RN, answer questions on sex and fertility.